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SUMMARY:Patient reported outcome measures are different - Leah McClimans (
 University of South Carolina)
DTSTART:20190207T153000Z
DTEND:20190207T170000Z
UID:TALK112819@talks.cam.ac.uk
CONTACT:Agnes Bolinska
DESCRIPTION:Since the 1970s epidemiological measures focusing on 'health-r
 elated quality of life' or simply 'quality of life' have figured increasin
 gly as endpoints in clinical trials. Before the 1970s these measures were 
 known\, generically\, as performance measures or health status measures. R
 elabelled as 'quality of life measures' they were first used in cancer tri
 als. They were relabelled again in the early 2000s as 'patient-reported ou
 tcome measures' or PROMs\, in their service to the FDA to support drug lab
 elling claims. To the limited degree that the philosophical literature add
 resses these measures\, it tends to associate them with two of the major t
 heories of well-being: subjective well-being and capability approach to qu
 ality of life. My general argument in this paper is that philosophers ough
 t to treat quality of life measures/PROMs as distinct from these theories 
 of well-being with their own theoretical commitments\, values and epistemi
 c concerns.\n\nThe primary reason I will give for this argument is that we
  cannot separate the rise in popularity of quality of life/PROMs from thei
 r role in representing and amplifying patients' perspectives. The nature o
 f this representation is due to a historical context in medicine that emph
 asizes patient autonomy and patient expertise. I will argue further that t
 hese measures are 'patient-centred' to the degree they are patient directe
 d and inclusive. Finally\, I will end by suggesting that the theory qualit
 y of life/PROMs needs is not an attribute theory or a theory of prudential
  value\, but an epistemic theory that governs patient and others contribut
 ions to the construct.
LOCATION:Seminar Room 2\, Department of History and Philosophy of Science
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