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SUMMARY:Consent\, Prosent and Biomedical Data in the Era of Blockchain– 
 gloknos seminar - Sebastian Porsdam Mann (University of Copenhagen)
DTSTART:20190610T130000Z
DTEND:20190610T150000Z
UID:TALK126235@talks.cam.ac.uk
CONTACT:Samantha Peel
DESCRIPTION:All are invited to join us for this event in the 'cum panis' s
 eminar series\, hosted by gloknos at CRASSH. The 'cum panis' seminars are 
 a space to share work currently in progress and break bread (or cake!) wit
 h new intellectual companions.\n\nIn this session we are joined by Sebasti
 an Porsdam Mann (University of Copenhagen) to hear about his ongoing resea
 rch. Sebastian is is a Postdoctoral Research Fellow at Harvard Medical Sch
 ool’s Center for Bioethics and the University of Copenhagen\, currently 
 visiting the University of Oxford Uehiro Centre for Practical Ethics. \n\n
 Abstract:\nAdvances in medical and information technologies have led to ma
 ssive increases in the volume and complexity of medical data\, presenting 
 serious problems for traditional models of specific and informed consent t
 o medical research. However\, these advances also enable novel ways to sec
 urely share and analyse data. This paper introduces one of these advances 
 – blockchain technologies – and argues that they can be used to share 
 medical data in a secure and auditable fashion. Many aspects of consent an
 d data collection\, as well as data analysis\, can be automated using bloc
 kchain-based smart contracts. This paper demonstrates how blockchain techn
 ologies can be used to further all three of the bioethical principles unde
 rlying consent requirements: the autonomy of patients\, by giving them muc
 h greater control over their data\; beneficence\, by greatly facilitating 
 medical research efficiency and by reducing biases and opportunities for e
 rrors\; and justice\, by enabling patients with rare or underresearched co
 nditions to pseudonomously aggregate their data for analysis. Finally\, we
  coin and describe the novel concept of prosent\, by which we mean the blo
 ckchain-enabled ability of all stakeholders in the research process to pse
 udonomously contact\, request and exchange information with each other\, t
 hus radically enhancing the possibilities for scientific engagement.\n\nPl
 ease email sjp229@cam.ac.uk to confirm your space and receive the reading 
 for this seminar. 
LOCATION:CRASSH Meeting Room\, Alison Richard Building\, 7 West Road\, Cam
 bridge\, CB3 9DT
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