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SUMMARY:Consent\, Prosent and Biomedical Data in the Era of Blockchain– 
 gloknos seminar - Speaker to be confirmed
DTSTART:20191030T120000Z
DTEND:20191030T140000Z
UID:TALK129868@talks.cam.ac.uk
CONTACT:Samantha Peel
DESCRIPTION:*gloknos 'cum panis' seminar series – Dr Sebastian Porsdam M
 ann (University of Copenhagen)*\n\nAbstract:\nAdvances in medical and info
 rmation technologies have led to massive increases in the volume and compl
 exity of medical data\, presenting serious problems for traditional models
  of specific and informed consent to medical research. However\, these adv
 ances also enable novel ways to securely share and analyse data. This pape
 r introduces one of these advances – blockchain technologies – and arg
 ues that they can be used to share medical data in a secure and auditable 
 fashion. Many aspects of consent and data collection\, as well as data ana
 lysis\, can be automated using blockchain-based smart contracts. This pape
 r demonstrates how blockchain technologies can be used to further all thre
 e of the bioethical principles underlying consent requirements: the autono
 my of patients\, by giving them much greater control over their data\; ben
 eficence\, by greatly facilitating medical research efficiency and by redu
 cing biases and opportunities for errors\; and justice\, by enabling patie
 nts with rare or underresearched conditions to pseudonomously aggregate th
 eir data for analysis. Finally\, we coin and describe the novel concept of
  prosent\, by which we mean the blockchain-enabled ability of all stakehol
 ders in the research process to pseudonomously contact\, request and excha
 nge information with each other\, thus radically enhancing the possibiliti
 es for scientific engagement..\n\nAttendance at this seminar is free but s
 paces are limited\, so please "email the organiser":mailto:sjp229@cam.ac.u
 k to reserve your seat.\n\nYou can also visit the CRASSH website: www.cras
 sh.cam.ac.uk/events/28624\n\ngloknos is initially funded for 5 years by th
 e European Research Council through a Consolidator Grant awarded to Dr Ina
 nna Hamati-Ataya for her project ARTEFACT (2017-2022) ERC grant no. 724451
 . 
LOCATION:Room S3\, Alison Richard Building\, 7 West Road\, Cambridge\, CB3
  9DT
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