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SUMMARY:Electronic health records: which is worse\, the UK system or the U
 S System? - Deborah C. Peel\, Patient Privacy Rights
DTSTART:20080905T150000Z
DTEND:20080905T160000Z
UID:TALK13305@talks.cam.ac.uk
CONTACT:Ross Anderson
DESCRIPTION:Dr. Deborah Peel will discuss the current threats to privacy p
 osed by the use of electronic health records in America. She is convinced 
 that the US health IT system is far worse than that of the UK. And America
  has nothing comparable to the EU system of data privacy commissioners to 
 protect the public's human rights. She argues that the current Administrat
 ion and Congress has enabled and frankly encouraged US industry and govern
 ment to engage in widespread surveillance\, theft\, sale\, and misuse of A
 mericans' sensitive personal health data. In 2002\, the U.S. Department of
  Health and Human Services eliminated the right of consent in the HIPAA Pr
 ivacy Rule\, turning it into an 'Anti-Privacy Rule'. The result was to eli
 minate Americans' rights to control the use and disclosure of personal hea
 lth information in electronic systems. Secondary uses without consent are 
 now the primary uses of health data in the US.\n\nToday\, Americans have n
 o way of knowing how many secret databases across the world store and use 
 their health records. Both industry and the government lust after total ac
 cess to the nation's treasure troves of health data. Numerous industries e
 xploit the extreme commercial value of richly detailed health data.  For e
 xample\, one data miner\, listed on the NYSE\, reported revenues of $2 bil
 lion dollars in 2006. The seriously flawed US health IT system has spurred
  technology innovators to restore privacy rights by building trustworthy s
 ystems and products controlled by patients. The route to progress and the 
 widespread adoption of health IT is through privacy. But consumers can't t
 ell which systems and products to trust.\n\nA new consumer-led privacy cer
 tification organization\, Patient Privacy Certified\, will audit health IT
  systems and products for adherence to the toughest privacy standards in t
 he world. Certified products will be awarded a seal so consumers can tell 
 they offer ironclad secure and privacy for health records.\n\nSpeaker:\n\n
 Deborah C. Peel\, MD\, founded Patient Privacy Rights in 2004 "www.patient
 privacyrights.org":http://www.patientprivacyrights.org to guarantee that A
 mericans control all access to their personal health information. Patient 
 Privacy Rights is America's leading consumer advocacy organization working
  to restore patients' rights to health information privacy.\n\nIn 2006\, D
 r. Peel formed the bipartisan Coalition for Patient Privacy. Coalition mem
 bers include the Family Research Council\, the Christian Coalition\, the E
 lectronic Privacy Information Center\, the ACLU\, the California Medical A
 ssociation\, and the American Chiropractic Association - over 50 organizat
 ions representing 7 million people.\n\nIn 2007\, the world's largest techn
 ology corporation\, Microsoft\, joined the Coalition and agreed to adhere 
 to the Coalition's privacy principles. Also in 2007\, Dr. Peel was voted #
 4 of Modern Healthcare's 100 Most Powerful in Healthcare.\n\nIn 2008\, PPR
  launched PrivacyRightsCertified\, a consumer-led organization to certify 
 electronic systems and software that meet the toughest national and intern
 ational standards for privacy. This enables the public to tell which elect
 ronic health systems and products ensure that personal health information 
 is secure and all access is controlled by the patient. Microsoft's HealthV
 ault will be the first platform audited.\n
LOCATION:Lecture Theatre 2\, Computer Laboratory\, William Gates Building
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