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SUMMARY:Sharing personal experience with people who have severe and profou
 nd communication difficulties. - Dr Nicola Grove\, Director\, Openstorytel
 lers\, Honorary Research Fellow\, City University
DTSTART:20110202T123000Z
DTEND:20110202T133000Z
UID:TALK27617@talks.cam.ac.uk
CONTACT:Sarah White
DESCRIPTION:Narrative recall of personal experience is critical to the for
 mation of personal identity\, is fundamental to the process of decision ma
 king\, and is one of the main ways in which people make and sustain friend
 ships over the lifespan.  For people with severe and profound disabilities
 \, this kind of anecdotal storytelling is extraordinarily difficult.  Evid
 ence suggests:-\n•	Staff and families tell stories ABOUT people with hig
 h support needs\, but not WITH them \n•	Lives are dominated by routines\
 , so there are few reportable experiences. This reduces the likelihood of 
 recall\, limits the potential for social learning and leads to a lack of m
 otivation to tell \n•	Experiences that could be made into stories pass u
 nnoticed or are told only by staff \n•	Social networks are restricted\, 
 so there are few people interested in hearing a story \n•	Additional pro
 blems include the difficulties for families in recalling highlights from t
 heir children’s lives and the prioritization of choice and control over 
 issues of social inclusion. (Grove\, 2007) \n Storysharing™: is one of t
 he strands of the Mencap Involve Me project 2009-2011. It is an approach d
 eveloped over 10 years of research and action learning\, into the ways in 
 which stories are shared between friends in everyday life.  Funded by the 
 Partnership Board in Somerset\, nine courses have been run over 3 years wi
 th 77 service users\, 39 staff\, in 8 residential homes and 1 day centre. 
  Qualitative data were collected\, including: observations of sessions and
  interviews with staff before and after the project.  Groups are now being
  run by staff\, with people visiting each other to share their stories\, a
 nd meeting up locally.  We are on our way to establishing the main aim of 
 the project: to develop a narrative culture across the service.\nThis pres
 entation will introduce the principles of storysharing\, demonstrate the p
 rocess through role play and video/audiotaped evidence\, and discuss the s
 ignificance of narrative in personal and social development.\n \nNicola Gr
 ove is Director of Openstorytellers Ltd\, the first company of storyteller
 s with learning disabilities.  She is a retired speech and language therap
 ist\, with specialist interests in signing and augmentative and alternativ
 e communication\, and inclusive approaches to subjects in the National Cur
 riculum\, as well as narrative and storytelling.  publications include:-\n
  \nGrove\, S.\, Grove\, N.\, Myerscough\, T. (2010)  Intellectual disabili
 ties  and war: Issues for consideration. Journal on Developmental Disabili
 ties\, (16)/1\, 82-90.\nGrove\, N\, (2007)   Exploring the absence of high
  points in story reminiscence with carers of people with profound disabili
 ties Journal of Policy and Practice in Intellectual Disabilities\,4\, 252-
 259  \n            Rudd\, H.\, Grove\, N & Pring\, T.   (2007) Teaching pr
 oductive sign modifications to children with intellectual impairments  Aug
 mentative and Alternative Communication\, 23\, 154-163.\n            Grove
 \, N. & Dockrell\, J. (2000) Multi-sign combinations by children with inte
 llectual impairments: an analysis of language skills.Journal of Language\,
  Speech & Hearing Research\, 43\,  309-323.\nGrove\, N.\, Porter\, J.\, Bu
 nning\, K. & Olsson\, C. (1999) Interpreting the meaning of communication 
 by people with severe and profound intellectual disabilities:Theoretical &
  methodological issues. Journal of Applied Research in Intellectual Disabi
 lities\, 23\n\nGrove\, N. (2010) The big book of Storysharing:At home\, in
  school.  London: SENJIT/Institute of Education.\nGrove\, N. (2009) Learni
 ng to tell\; a handbook for inclusive storytelling.  Kidderminster: BILD p
 ublication.  \nGrove\, N. (2005) Ways into Literature. London:David Fulton
 . 2nd Edition of Literature for All:  London: David Fulton. Joint winner  
 NASEN book award\, 1999.\nvon Tetzchner\, S. & Grove\, N.  (Eds) (2002)  N
 ew developments in Augmentative and Alternative Communication.. London: Wh
 urr Publishers.\n\nGrove\, N. (2001) See what I mean: guidelines for the i
 nterpretation of communication by people with severe and profound disabili
 ties.  BILD Publications.\nGrove\, N. & Park\, K. (1996) Odyssey NOW. Jess
 ica Kingsley Publishers\n
LOCATION:Large Meeting Room\, Douglas House\, 18B Trumpington Road\, Cambr
 idge
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