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SUMMARY:Health and Policy Research in Africa: Gathering opinions using int
 eractive radio and SMS in East Africa - Dr Claudia Abreu Lopes (Africa's V
 oices Foundation)
DTSTART:20160113T120000Z
DTEND:20160113T140000Z
UID:TALK63461@talks.cam.ac.uk
CONTACT:39422
DESCRIPTION:Format of the session: presentation (one hour) and discussion 
 (one hour)\nThis session will explore the ethical challenges of working wi
 th citizen-generated data in the African context\, with a particular focus
  on projects involving radio discussions and data gathering using SMS and 
 digital platforms. We will discuss issues around informed consent\, data p
 rivacy and modelling security threats using some examples of a community c
 onsultation on oil and gas extraction in Turkana\, Kenya and a large-scale
  data gathering on beliefs and misconceptions on polio and routine immuniz
 ations in Somalia.\n\nAfrica’s Voices Foundation provides detailed insig
 hts into the views and priorities of remote\, under-served and bottom-of-t
 he-pyramid social groups mainly in East Africa. We work on behalf of socia
 l service providers and policymakers to engage communities in inclusive wa
 ys on broadcast and new media\, such as through local language radio discu
 ssions. We then analyse the multitude of conversational data for insights 
 into the community's views and opinions. This unique service enables organ
 isations to build a deeper understanding of target groups\, which can be u
 sed to design services and evaluate effectiveness.\nwww.africasvoices.org\
 n\nPlease note\, spaces are limited and participants are encouraged to app
 ly early to secure a place.\n\nThis session is open to researchers by appl
 ication and discussion will be conducted under Chatham House rules. If you
  are interested in attending please register at http://www.bigdata.cam.ac.
 uk/research/the-ethics-of-big-data/workshop-registration/Lent2016  and exp
 ress your interest with a 100 word statement\, explaining how your researc
 h will benefit from participation in the session\n\nDuring Lent Term the E
 thics of Big Data group will explore the challenges of applying ethical re
 asoning in different contexts connected with Big Data research. Our invite
 d speakers will present and discuss case studies from data-driven health a
 nd policy research in Africa\, administrative data research in the UK\, th
 e implementation of eHospital\, a new digital platform linking patient rec
 ords across Cambridge University Hospitals and research using social media
  data\, including a study of the Islamic State organisation.\n\nThe term's
  programme will finish with a public session on 9 March where an invited p
 anel of experts from a range of different disciplines will be invited to c
 onsider a 'mock' research proposal which brings together a variety of the 
 challenges from the real life case studies and present their reasoning to 
 the audience for discussion.\n\nIf you have a question about this talk\, p
 lease contact the Session Convenor: Anne Alexander\nOpen to all but regist
 ration is required and a 100 word statement to participate in any of the f
 irst four sessions.\n \n\nBackground reading:\n\n1. Guide developed by the
  Responsible Data Forum with best practices and resources for responsible 
 data in development projects:\nhttps://responsibledata.io/ways-to-practise
 -responsible-development-data/\n\n2. DataShift/Engine Room report on model
 s of collaboration between governments and civil society on citizen-genera
 ted data:\nhttp://civicus.org/images/citizen-generated%20data%20and%20gove
 rnments.pdf\n\n\nPart of the Ethics of Big Data Research Group\, series\n\
 nAdministrative assistance: gradfac@crassh.cam.ac.uk
LOCATION:Room SG1\, Alison Richard Building\, Sidgwick Site\, 7 West Rd\, 
 CB3 9DT
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