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SUMMARY:Engaging Citizens in Questions of Health and Data Privacy - Malcol
 m Oswald (Citizens' Juries c.i.c)
DTSTART:20161206T115000Z
DTEND:20161206T121000Z
UID:TALK69345@talks.cam.ac.uk
CONTACT:INI IT
DESCRIPTION:<br><span><span>Malcolm Oswald PhD is Director of social enter
 prise Citizens Juries c.i.c.\, and an Honorary Research Fellow in Law at t
 he University of Manchester. He has worked for many years on information g
 overnance in the NHS\, including developing NHS guidance on anonymisation.
 <br> He will talk about two citizens&rsquo\; juries designed and run by th
 e University of Manchester\, and the significance of these for public poli
 cy. The juries explored questions about whether health data derived from p
 atient records should be used for purposes such as research and clinical a
 udit\, but also more contentious uses of such data by commercial organisat
 ions e.g. for new drug discovery.&nbsp\; Each jury brought together a cros
 s-section of citizens\, 18 in each jury\, to hear evidence from expert wit
 nesses. An independent oversight panel monitored for bias. The juries deli
 berated together over 3 days\, to reach conclusions about the questions th
 ey were set.</span> <br> </span><br><br><br><br>
LOCATION:Seminar Room 1\, Newton Institute
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