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SUMMARY:Cambridge Rare Disease Summit 2017 - Dr Segolene Ayme - Founder of
  Orphanet Dr Bobby Gaspar - GOSH\, Dr Ana Mingorance – Dracaena Consulti
 ng\, Chasing cures for neurological and rare diseases amongst many others
DTSTART:20171023T073000Z
DTEND:20171023T183000Z
UID:TALK74861@talks.cam.ac.uk
CONTACT:jo balfour
DESCRIPTION:Tickets available http://camraredisease.org/index.php/crdn-sum
 mit-2017/ with discounted rates for students\, start-ups and academics.\n\
 nThis day long event seeks to create a forum that brings together patient 
 groups\, healthcare\, academics\, researchers\, biotech companies\, and th
 e pharmaceutical industry in a spirit of collaboration\, innovation and pa
 ssion to explore our theme : “Re-imagining the Patient Journey” for Ra
 re Diseases\n\nKey speakers: Dr Segolene Ayme - Founder of Orphanet\, Dr B
 obby Gaspar - GOSH\, Dr Ana Mingorance – Dracaena Consulting\, Chasing c
 ures for neurological and rare diseases amongst many others. Talks coverin
 g gene-editing\, pharma/patient grp collaborations to treatments\, drug re
 -purposing and social impact bonds\, Mendelian the new rare disease search
  engine etc\n\nNew for 2017: Patient Journey poster gallery - seeking coll
 aborations with pharma\, researchers and clinicians\n\nStudents4RareDiseas
 es breakout session: for foundation doctors\, medics and healthcare profes
 sionals in early stage training. A medic's Rare Disease patient journey\, 
 the utility of the diagnosis\, red flags and the 100\,000 Genome Project \
 n\nNo Isolation breakout session: Norwegian tech company showcase AV1 avat
 ar\, designed to reduce the isolation experienced by children with chronic
 \, lifelong illness. See how AV1 can connect and include them.\n\n220+ del
 egates\, excellent networking opportunities followed by a drinks and canap
 e reception in the dining hall on site\n\n
LOCATION:Robinson College Auditorium\, Grange Road\, Cambridge\, CB3 9AN
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